Coping with chronic pain – that lonely 3am

Image courtesy of @jontyson

There’s nothing quite as lonely as 3am. The house is quiet; my family asleep. At times like these it’s easy to feel alone. My pelvis is fire, my back screaming in agony each time I shift my position. But I have my blog, words. I can let my pain travel through my fingertips and onto the page. Whether I post this or not, it will be therapeutic to write.

I thought I’d got a handle on my health the past couple years. Along with treatments from a fabulous hospital, I’ve overhauled my diet, take light exercise where I can, meditate daily. My pain had decreased, mobility improved. Lately though there’s been a sense of slipping backwards while trying desperately to cling on to the good days, not let the bad days take over.

Tonight is the worst I have been for a long time. It hurts to move. It hurts to stay still. It’s been an odd day, much to celebrate. My super agent has sold my book rights to Korea, a brand new territory for me – my twenty-fourth. The Date is in Apple’s top 10 biggest selling books for 2018. I put both things on Facebook and instantly received a direct message. ‘You’re having such a good day! You’re living my dream.’

From the outside looking in, my life does seem perfect, except it isn’t. No-ones is.

My evening has been spent upstairs because we don’t have a downstairs toilet and I can’t face going up and down the stairs.

Worries fill my mind – How can I do my Christmas shopping if I can’t get out? Am I going to have to change my weekend plans as it will be uncomfortable to travel? Will I miss my first author Christmas party with my new publisher on Monday? Gradually these thoughts, as thoughts do, become darker. Sharper. Swelling, along with the panic inside me. Am I going to end up in a wheelchair again?

My mind is in overdrive; anxiety over the future overshadowing my present where, relatively speaking I am okay. I am safe.

I am loved.

I reach for my gratitude journal and this is what eventually calms me. Replacing the negatives with positives and really, I have so much to be grateful for, from the strangers who support me online to the dog who snoozes on my bedroom floor who is always overjoyed to see me when he wakes, regardless of my mood.

My list grows and my pain doesn’t feel quite so all consuming anymore. I know soon I shall be able to sleep.

I have a roof over my head, a warm bed. A family who love me. I know I’m one of the lucky ones.

And tomorrow? Tomorrow things will be different because they alway are. The only thing you can rely on is change and I find this comforting because I am certain that just as things can get worse, eventually they will also get better.

This too, shall pass.